Using standardized research protocols and data collection forms, RHSCIR tracks the experiences and outcomes of people with traumatic SCI during their journey from acute care to rehabilitation to community reintegration. Details about participants' spinal cord injuries including extent of injury and level of paralysis, recovery, and success of various treatments are among the data recorded.
Across Canada, RHSCIR is collecting comprehensive SCI data for the purpose of improving SCI care and clinical outcomes. The Registry promotes, encourages and supports the pursuit of excellence in SCI health care management.
Better outcomes for people living with SCI
The most vital and fundamental component of RHSCIR is its contributors - people with traumatic spinal cord injury. Their continued participation will determine the value and success of this registry. In the long term, the reward is clear - RHSCIR will accelerate the discovery, validation and translation of relevant treatments and practices that will increase independence and improve outcomes and quality of life for people living with SCI.
An invaluable resource for researchers and clinicians seeking to better understand SCI
The data collected in the Registry contains powerful information that will help track the effectiveness of specific treatments, practices or programs for improving functional outcomes and quality of life after SCI. As well, RHSCIR is expanding its reach internationally in order to increase the quality of data collected.
RHSCIR collects data using a powerful data collection and management platform called the Global Research Platform (GRP). This tool was developed by RHI's in-house specialized IT team and has been in use in RHSCIR-sponsored sites since November 2011; it is also used to support important new multi-centre clinical trials for SCI and other conditions.
RHSCIR provides the larger community of researchers, clinicians and health care professionals, government organizations, other funders, and industry with a powerful research and reporting tool. It promotes collaboration and research, helps partners achieve their SCI information goals, ensures data quality, and remains current with changing trends and issues in health care management.
> Research Publications: In partnership with the national RHSCIR Network (31 acute and rehab facilities across Canada), we are currently working on several research publications using the national RHSCIR data. Please check the Scientific Reports & Presentations section of our website for the latest publications.
> Supporting Clinical Initiatives in Spinal Cord Injury (SCI2): This resource site encourages front-line clinicians to become more involved in RHSCIR. The site includes expert-curated resources, toolkits for assessment, and clinical reports. These reports give simple, actionable information about each of the clinical areas on SCI2 and shows how patients change over time and how they compare to patients across the country. sci2.rickhanseninstitute.org.
> RHSCIR Special Report 2011-2013: This first ever report includes data on areas such as demographics, level and severity of injury, length of stay in acute and rehab care and social impacts post-injury such as income, marital status and employment. View the report (English, French)
> International Collaborations: Since 2015, Registry sites have been established in China, New Zealand and Israel, marking its turn as a truly global study that connects the international SCI research and clinical care communities.